IV bagI got my Benlysta infusion this week. I’ve been on it for about three years and it’s been working out really well for me.

What made me excited this week is there were two other people receiving the treatment in the infusion room with me. It’s exciting because we’re getting more doctors to prescribe and more patients to take the only drug on the market right now to specifically treat lupus. With more people on it, we can get more information about how it affects us. The more information we have on how it effects us, the more confidence doctors and patients can have when weighing the decision to begin the treatment. We’ll also be able to get more studies about Benlysta and that can lead to new discoveries of treatments that might help…or even cure us!!

One of the women said she is on her 6th dose (including the loading doses). She hasn’t seen an effect yet, but I told her it took me about 6 months to see the benefit. I hope this will encourage her to stay on a little bit longer. Everyone with lupus is different so I don’t know if it will work for her (or other lupus patients) but I hope she is not too down on it just yet.