(If you are new to the spoon concept, read the Spoon Theory by Christine Miserandino)
This will be a short post, but I think it’s worth sharing at this point. Reflecting on the past few weeks since I’ve started this blog and my foray into social media, I wanted to say that I think we are an awesome community! I’ve read lots of twitter posts, blogs and am amazed and proud of us and what we are capable of despite having a (or multiple) chronic illness(es).
Encouraging words, story-sharing, tips, frustrations, and expressions of a wide range of emotions fill the comment boxes, twitter and instagram feeds. I’ve been participating in twitter chats and have “met” other like-minded e-patients, advocates and the like.
We deal with a lot and we probably don’t give ourselves enough credit when things aren’t going well. Here are the top 5 things that I think make us fantastic:
- We can handle pain like no one else (“regular people” level 10 pain might be a “5” to us).
- We have lots of seemingly random knowledge about things: medicine, supplements and resources.
- We have more understanding of and empathy for others with illness/disabilities.
- We are probably better equipped to handle stress than most. (So…you missed your train…meh! No big deal).
- We go through all of this, but still manage to support each other and find some humour or silver lining.
So to my fellow spoonies and lupus warriors, a round of (gentle) applause, (gentle) hugs and (gentle) high-fives.
This song always gets me moving and feeling strong (the makeup is pretty fierce too):
“Shootin’ at the walls of heartache, bang, bang, I am the warrior!
Yes I am the warrior and victory is mine!
The warrior…the warrior!”
–The Warrior, Patty Smyth